Category Archives: all about ME

About surgery and its scars. [TW]

An audio version of this post is available here. I read this piece in the Guardian about the psychological scars left in people after being in intensive care, and it has prompted me to write this. Fair warning: this piece … Continue reading

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The year of good magic.

An audio version of this post is available here. People do year round-ups, and I have tried to in the past, but if I’m honest it has been an unsatisfying exercise because in 44 years of flapping about on life’s … Continue reading

Posted in all about ME, gardening, life | Tagged , , , , | 10 Comments

Fearless

An audio version of this post is available here. The back of my neck feels as though someone is standing on it, in army boots. Standing on one foot, with all their weight. When it feels like this I often … Continue reading

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Won’t be going to Feckcsavers again.

Let me set the scenario: having failed to see anything in the first visual field test, which they ran three times on one eye and once on the other, today I went back for a second one. This time an … Continue reading

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About trauma and illness and the intersection of those things.

This is an odd time of year for spring (assuming that you, dear reader, are in the northern hemisphere). Yet spring it is. I have for a long time been laid low by two things, and while there is a … Continue reading

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Traction

I conquered my face with eyeliner in much the same way that a child conquers paper with crayon, and went out for a walk. It was great. It was awful. I don’t understand how people formulate an emotional reaction to … Continue reading

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Absence (found).

With ME/CFS, sometimes I get a whole day where I wake up, go through the motions of starting my day (get dressed, make a pot of tea, feed the cats), and then I sit down … and the day just … Continue reading

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Because I haven’t done a personal update for ages.

The reason I haven’t done a personal update for ages is that 2013 has been difficult, thus far. I was doing really well at the back end of 2012. And then my health folded (ME/CFS), and this time it’s folded … Continue reading

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My life as a trapped animal.

I’ve got a grump on[1]. I don’t often grump – or if I do, it’s usually very brief and passes in a couple of hours, because I filter my own thoughts like a crab filters beach sand. I throw out … Continue reading

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Why are those pretend-sick people so darned UPPITY?

Damian Thompson has recently used the Daily Telegraph to highlight the difference between blogging and journalism. “… medical science has no great difficulty explaining what’s wrong with most people diagnosed, or self-diagnosed, with ME. Their brains create a debilitating fatigue … Continue reading

Posted in all about ME, this year | Tagged , , | 26 Comments