RSS
Tweets
- RT @JaeKay: 'Naked rambler' Stephen Gough jailed for flouting Asbo bbc.in/12b6zNt 11 months. Not much less than Stuart Hall. *slow … 2 hours ago
- *sweaty* 2 hours ago
- Dear Covent Garden: your picturesque cobblestones can do one. Signed #me #cfs 3 hours ago
Category Archives: all about ME
Absence (found).
With ME/CFS, sometimes I get a whole day where I wake up, go through the motions of starting my day (get dressed, make a pot of tea, feed the cats), and then I sit down … and the day just … Continue reading
Because I haven’t done a personal update for ages.
The reason I haven’t done a personal update for ages is that 2013 has been difficult, thus far. I was doing really well at the back end of 2012. And then my health folded (ME/CFS), and this time it’s folded … Continue reading
My life as a trapped animal.
I’ve got a grump on[1]. I don’t often grump – or if I do, it’s usually very brief and passes in a couple of hours, because I filter my own thoughts like a crab filters beach sand. I throw out … Continue reading
Why are those pretend-sick people so darned UPPITY?
Damian Thompson has recently used the Daily Telegraph to highlight the difference between blogging and journalism. “… medical science has no great difficulty explaining what’s wrong with most people diagnosed, or self-diagnosed, with ME. Their brains create a debilitating fatigue … Continue reading
Back in the room.
HELLO. I have been seriously not-ok since I did that post about cross-dressing. I have had the odd alrightish day, but basically bleurgh, culminating in the last couple of weeks, which have been straightforwardly rather hellish. I’m going to use … Continue reading
Fair warning: woman at work
I’m still suffering the tail end of this effing ‘flu, but I can’t defer my entire life because of it, so for the foreseeable future I’m just going to have to accept that every day I am very tired the … Continue reading
Posted in all about ME, life, this year
Tagged cfsid, exercise, fatigue, immune dysfunction, ME, me/cfs
4 Comments
Hotel chairs and lawnmowers.
“I’m starting to get excited about the torch passing. I’m thinking of going down tomorrow to join in. I’ll find a wall to stand on,” says Daddy, bringing to mind the moment when he plummeted off that chair in the … Continue reading
Posted in all about ME, this year
Leave a comment
Back up.
Touched by hedges, wet on the narrow path, and where the path is wider I plunge myself into them deliberately. Beech, privet with its sickly stink, a flock of tiny, dry moths fly up from the wet, wet, green. All … Continue reading
The lag.
I’m making slow progress, and tidal, which is frustrating but normal. The things you did well today may be hard to do tomorrow, and with this condition you learn very quickly that a day or an hour mean nothing, and … Continue reading
My experience of the correlation between food and fatigue/immune conditions (and whether a correlation is relevant in practical terms).
This is rather interesting, at least it is if you are someone, or know someone, who has a fatigue or immune-system-broken condition (ME, CFS, CFSID, Fibro, Behcets, Lupus etc etc). I started this year on a low-lectin diet. Lectins are … Continue reading
