Tag Archives: ME

Fearless

An audio version of this post is available here. The back of my neck feels as though someone is standing on it, in army boots. Standing on one foot, with all their weight. When it feels like this I often … Continue reading

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Won’t be going to Feckcsavers again.

Let me set the scenario: having failed to see anything in the first visual field test, which they ran three times on one eye and once on the other, today I went back for a second one. This time an … Continue reading

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Absence (found).

With ME/CFS, sometimes I get a whole day where I wake up, go through the motions of starting my day (get dressed, make a pot of tea, feed the cats), and then I sit down … and the day just … Continue reading

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Because I haven’t done a personal update for ages.

The reason I haven’t done a personal update for ages is that 2013 has been difficult, thus far. I was doing really well at the back end of 2012. And then my health folded (ME/CFS), and this time it’s folded … Continue reading

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My life as a trapped animal.

I’ve got a grump on[1]. I don’t often grump – or if I do, it’s usually very brief and passes in a couple of hours, because I filter my own thoughts like a crab filters beach sand. I throw out … Continue reading

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Why are those pretend-sick people so darned UPPITY?

Damian Thompson has recently used the Daily Telegraph to highlight the difference between blogging and journalism. “… medical science has no great difficulty explaining what’s wrong with most people diagnosed, or self-diagnosed, with ME. Their brains create a debilitating fatigue … Continue reading

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Back in the room.

HELLO. I have been seriously not-ok since I did that post about cross-dressing. I have had the odd alrightish day, but basically bleurgh, culminating in the last couple of weeks, which have been straightforwardly rather hellish. I’m going to use … Continue reading

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Fair warning: woman at work

I’m still suffering the tail end of this effing ‘flu, but I can’t defer my entire life because of it, so for the foreseeable future I’m just going to have to accept that every day I am very tired the … Continue reading

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The lag.

I’m making slow progress, and tidal, which is frustrating but normal. The things you did well today may be hard to do tomorrow, and with this condition you learn very quickly that a day or an hour mean nothing, and … Continue reading

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My experience of the correlation between food and fatigue/immune conditions (and whether a correlation is relevant in practical terms).

This is rather interesting, at least it is if you are someone, or know someone, who has a fatigue or immune-system-broken condition (ME, CFS, CFSID, Fibro, Behcets, Lupus etc etc). I started this year on a low-lectin diet. Lectins are … Continue reading

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