Tag Archives: me/cfs

Glass.

He says: “Write! You must write and you aren’t writing. It’s because you’re worried it won’t be good enough…” And “No,” I interrupt. “It isn’t that. It isn’t that.” I know I’m good. There is no ear to whisper into. … Continue reading

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Heels

An audio version of this post is available here. Somehow the shoes – not the clothes – were what did for me. Two crammed bin liners in, and I abruptly threw the second one down and walked out of the … Continue reading

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Advice I would have given me when I first got #MECFS. (#MECFSAwarenessDay)

There are about 250k people in the UK suffering from ME, MECFS, MECFSID, CFS. The fact we don’t even have one name to call this condition (Myalgic encephalomyelitis / Chronic Fatigue Syndrome / Immune deficiency) says it all. 250k is … Continue reading

Posted in all about ME | Tagged , | 9 Comments

The revolution will be blogged.

I am smack bang in the middle of the one operational window I get each year, where, for a few weeks, I can forget that my body doesn’t work: things like holidays and love seem attainable, and the whole of … Continue reading

Posted in all about ME, life | Tagged , , | 1 Comment

About surgery and its scars. [TW]

An audio version of this post is available here. I read this piece in the Guardian about the psychological scars left in people after being in intensive care, and it has prompted me to write this. Fair warning: this piece … Continue reading

Posted in all about ME, life | Tagged , , , , | 22 Comments

The year of good magic.

An audio version of this post is available here. People do year round-ups, and I have tried to in the past, but if I’m honest it has been an unsatisfying exercise because in 44 years of flapping about on life’s … Continue reading

Posted in all about ME, gardening, life | Tagged , , , , | 10 Comments

Won’t be going to Feckcsavers again.

Let me set the scenario: having failed to see anything in the first visual field test, which they ran three times on one eye and once on the other, today I went back for a second one. This time an … Continue reading

Posted in all about ME | Tagged , , , | 3 Comments