Chimera heart wanted.

An audio version of this post is available here.

“I wouldn’t mind embarking on an affair with someone from a circus,” I said, on twitter.

In my mind, there were trapeze artists, a bearded lady (there probably aren’t bearded ladies any more, although I have known lots of bearded ladies and frankly they were beautiful. Ladybeard is TO BE ENCOURAGED); perhaps a Strong Wo/man. There were definitely tigers in this circus and possibly an elephant in a tutu. Obviously I don’t hold with actual animals in circuses, but this is an imaginary circus, and in imaginary circuses, like with imaginary sex, EVERYTHING is allowed.

Lately I have been rasslin with the idea of Finding Someone Again. This is a silly thing to rassle with, as it isn’t a thing one can force to happen. It either happens or not. One can’t preempt it, nor is there an invocation (“DARK GODS OF OKC I IMPLORE THEE…”), cribbed from the works of Crowley and L Ron Hubbard that will *poof* one into being. There is no option on eHarmony that even begins to describe the tiniest corner of who I am, much less who I might be looking for. The very act of looking on a dating site means that whoever I find will be unsuitable (reason given below).

Nonetheless, I have rassled.

I find very, very few men physically attractive at all. Then you add on the fact that I’m a Proper Feminist Right, and that’s ruled out basically 99.9% of men (you’re reading this, right now, and you’re having one of those moments where you think “ah ha! But I am a Feminist Man so clearly I would be acceptable.” You probably wouldn’t. We’d end up embroiled in passive aggressive Mutually Assured Destruction because I caught you in a darkened room, screen turned away from the door, laughing at “8 Out of 10 Cats” IN YOUR PANTS).

Yeah, I’ve got your number. *narrows eyes*

So basically it’s a given that almost all men are ruled out by virtue of the above. Then the 0.1% that isn’t patriarchal and who is beautiful[1] is – and this is guaranteed – married to someone. Tiresome. I am greedier than this model permits.

I find far, far more women attractive than men. (I’m bi and despite the gigundous breasts, believe it or not, nonbinary.) Because

a) there are far more women feminists who are actually feminists; and
b) there are far more beautiful[1] women than men; and
c) when a woman is sexually attracted to you SHE NEVER LEAVES YOUR TEXTS UNANSWERED. (Except deliberately to make you sweat and swear.) (I don’t know why men do this, but they do and it’s shit. Stop it, ffs.)

But my attraction to women, although more frequent than my attraction to men, isn’t – usually – as strong. There are exceptions. The woman priest I saw having a fag in the St Mary Aldermanbury gardens remains one of the three “drop your coffee all down yourself” moments of vivid physical attraction I’ve had in my life. (I wasn’t carrying a coffee on that occasion, so I walked straight into a bed of verbena bonariensis instead. Stuff turns out to be surprisingly good at hooking onto your clothes, and is impossible to extricate yourself from coolly).

And I think really my problem with both is the binaryness of it all. Men. Women. It’s all alien to me. I’m always at a disadvantage, speaking binary-as-a-second language. I’m drawn to people who’ve subtly fallen through the defining net. I was brought up in a world where, two years before I was born, sexual acts “between two men” were decriminalised. But they weren’t in any way accepted. In my childhood and youth, gay men were – just about, technically – considered legal. But they weren’t considered acceptable. Lesbians didn’t exist at all. And bisexuals not only didn’t exist, when I found out that they were A Thing, I also found out they were somehow extra-filthy, because clearly they just wanted to have loads of sex with literally anyone and probably his dog, gerbil and furniture. If you’re of a generation younger than me I can’t express this to you. People were literally not permitted to be who they were. There was no way to be out when I was young. Defining yourself – figuring out what you were – was nigh on impossible, as a bisexual because the world did not contain the concept of bisexuality.

And so what becomes attractive, in that situation, specifically, is covercy. There should be a name for it. It should be a kink where everyone knows “Oh, that dude’s a covert.”

There probably wouldn’t be any coverts under 40. That’s ok. I think your grey hair and wrinkles are superhot.

So what I really probably ought to do is hunt down someone a bit like me, who specifically gets a frisson from passing and then transgressing (this is why I totally understand transvestite men), whose self definition stems from being not-that. Because really what I like is having or being a colossal secret. That’s my specific brokenness. I know I am allowed to be anything I like, now.

But what I like being is forbidden.

So I’m basically keeping my eyes open for the next MX, MS, or MR chiller. They’re probably wearing a suit. Or a priest’s robe. But under it could be ANYTHING.

[1] to me, and my idea of beauty is … well, it’s broad and rich, ok? It isn’t magazine beauty, and it incorporates both the bony and the lushly corpulent.

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A pornographic parable.

An audio version of this post is available here.

Once upon a time a lovely, very principled old woman lived in a society that was torn apart by civil war. There were more and more dead every week. She was personally endangered by the civil war, as were her friends, her family, and all of the people in her little village, all of whom worked for her company. Yet their work made them feel safe, because what they made was the very essence of a peaceful country life, a life as it should be.

She made a living making the most beautiful hunting rifles. She sold these hunting rifles in surprising numbers.

Inspired by this article, on ethical porn, which I saw tweeted by @nellbelleandme.

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Words.

You reed-bed wave of gold,
under still blue
tacit, folded
in you sleep
a million hushing
hushing birds.
I run through:
start all your words
into the sky. These waking starlings
shout, or murmur, let them fly.

An audio version of this poem is available here.

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Valentine’s Day: she went there.

An audio version of this post is available here.

The absolute worst thing about being single on any day (including this one WHICH SHALL NOT BE MENTIONED), is encouplinated people saying things like “you’ll meet someone, I know you will,” or “there’s someone out there for you,” or “you deserve to be happy” (I FUCKING KNOW I DO); or “I can’t understand why you’re single.”

Well. That might be the worst bit.

Or it might be where people post photographs of the flowers / lush jewellery / booze / puppies / houses in the country / sex toys / waders (hey – love can be topical) they’ve been bought.

Or it might be encouplinated people telling you “there are other things in life” (yes, that’s great, but if someone’s dying of dehydration telling them that peanut butter is weww tasty doesn’t help).

I got about half an hour into twitter today – and you know I like to put a full day in at the twitface – before it overwhelmed me. Having woken perky and surprisingly not in that much pain, I attained what I can only refer to as “The Full Plath” before 10am. Naturally my gas cooker has the wrong sort of gas and since I had my cellar converted there are no exposed beams over which to loop a length of woven hemp. Frankly the exposed beams I had were only five and a half foot off the ground anyway. So there’s nothing for it but to grit teeth and get through it, preferably without biting anyone. Since the very nub of the crux of the matter is that there is nobody here to bite, this in itself is frustrating.

How do you even go on a date with someone when you’re mostly housebound? You don’t, I suppose. Are all disabled people who weren’t encouplinated before they became disabled just sitting there, at home today, thinking “ah, feck”?

My last relationship ended in 2003. Eleven – ELEVEN – years ago. Aside from the odd loveless shag – not loveless on my part: I can’t bear one-nighters, find sex just for the sake of sex the single most unrewarding and actively depressing thing in the universe (largely because blokes you have casual sex with are rarely invested in whether you’re enjoying it, or in doing anything to ensure that you are), but I’m terrible for falling vividly in love with people who turn out to just sort of eeh like me a bit, ish, kinda. So passes eleven years. I sort of can’t imagine what relationships are like any more. I mean: someone living with you. Cluttering up your head space. Strewing socks hither and yon. Getting annoyed with you for, you know, existing. Trusting someone. Someone being kind to you. How does that work? The last bit, the being kind bit – particularly if we’re talking about being physically kind, which shaggers aren’t – pretty much makes me panic. I’m guessing (without looking too hard at it) that that’s because it’s the bit I miss the most, and is the bit that I am therefore least likely to permit anyone to do. Because not having it is one thing. Having ten minutes of it and then nothing again is simply a variety of agony I cannot bear.

I can’t pretend to be awash with despair on the topic of love. Neither can I pretend that I don’t think about it. Nor that I hope, particularly. I think about it more than I would like to. Or not think – I don’t think about it, I feel the hollow ache of it. And I suppose my approach to it can basically be summed up as “well, either it happens by some astounding fluke or it doesn’t, there really isn’t much I can do about it. And it hasn’t happened for eleven years, and now I’m in a position of never meeting anyone new, so it’s unlikely. So let’s proceed on that basis and just try to ignore it.” I’m pretty ok at ignoring it. It’s like living with an eating disorder of the heart. Always hungry.

I won’t see this blog entry pop up on twitter, because I’ve muted all mentions of This Particular Day from my TL, not through bitterness – I don’t resent you your loving relationship one bit – but just as a damage limitation. But if you’re fortunate enough to have somebody in your life who isn’t going away, so you can allow them to be kind to you, I hope that you have a very lovely day, or evening together. And you’re right to revel in it. It’s a good thing.

Happy V-day, yo. x

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Calendar girl.

An audio version of this post is available here.

I’m writing this as part of Twitter’s #TimeToTalk day, encouraging people with MH issues to speak about it (and, very importantly, other people to listen!).

There’s this thing you do if you have PTSD – or maybe it was just me, maybe nobody else does it, but that seems unlikely. You mark your calendar with the dates that are triggering. You don’t do it because you want to remember, you do it in the way a road worker sprays bright yellow paint around a hole, so people don’t fall into it. You’re afraid of those dates, those days, those moments when the Earth treads back through the tracks it made a year, five, ten years ago. Somehow when this happens you can feel that event still occurring, through the thinnest veil (time is not substantial, after all), and the gravity of it pulls you to pieces. Again.

Human brains prioritise fear. It’s not a choice, it’s mere biology. You can’t “snap out of it” once your amygdala’s gone into party mode, any more than you can will your liver to process an aspirin more quickly. It’s an organ. All animals’ brains will prioritise the things that frighten them, because doing so helps the animal react and survive. This is great until you have PTSD and your brain is prioritising something that isn’t happening, as if it was.

Years ago – and that was years after the event – I deleted those calendar entries. It made no difference, of course. The dates rolled around. Up pricked my ears. The fear engines started up again each time, and I would know weeks before the date, that that date was coming. I don’t mean I’d sit and think about it. But it was there, like the world’s worst sort of exam-dread. Manageable (in the day). Unavoidable.

Something happened, though. Last year I noticed it. The Earth rolled back into its own footsteps and … wait. Was it the 30th? Or the 31st? I stared at the blank calendar. It was gone. I mean, it wasn’t totally gone. I knew it was the 30th or the 31st. I think it was the 30th. But here’s the thing: I AM NOT CERTAIN. It has faded.

Then a date I do remember rolled around. And on that date, I thought, once, briefly: “oh, it’s that date”, and it rolled past, with that as its only memorial, as unemotional as noticing the weather. I had other things in my head that day, normal things. Maybe I’ve grown a whole new head. I’ve definitely stepped out of that worn-deep track of behaviour and memory. I’m not standing in that muddy ditch any more.

Anyway, the point of this is this: when you feel you can without it making you panic, delete those calendar entries. It won’t make those days less awful. Not for a long time. But it is the start of the process that leads to those days becoming just days, and to you becoming a person who steps out of that worn trench and chooses where they walk. x

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To a child crying on the pavement.

Oh child
on your little scooter
three times you nearly had me over
your mother thirty yards behind,
child
to whom that man was kind
as he untangled you from his shin.
Child, child
welcome in
to the world of Schadenfreude.

An audio version of this poem is available here.

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About surgery and its scars. [TW]

An audio version of this post is available here.

I read this piece in the Guardian about the psychological scars left in people after being in intensive care, and it has prompted me to write this. Fair warning: this piece is very emotionally raw for me, and is very frank about surgery, and maybe this sentence should be me saying “turn back now, those of a weak disposition”, but actually I’m saying the opposite. Read it. People you know and love are going through stuff like this. If they’re not now, they will at some point. Read it.

I was at school with a boy called Marvin*, who had had the misfortune to be born with hydrocephalus. I didn’t know him well. I can remember, on a little green in front of the school – just outside the gates – while waiting for his parents and corgi to arrive, we had our first and only ever conversation and he told me that he had-had fifteen surgeries. I think we were six, seven. Very much still in “little kid” territory.

It stuck in my mind.

Later in life, when I started to need surgery myself, Marvin rose through the mists of time, that skinny, fair-haired little boy with specs, who had had fifteen surgeries. And without ever knowing he had done it, he conspired with other pressures to shame me into solitude with my own experience.

I daresay he mentioned it – blurted it out almost as the first thing I knew about him – because that experience had been such a formative one. At that age, being in hospital, being ill, being operated upon repeatedly, probably constitutes almost all of one’s sense of identity, and that’s reinforced by the adults in one’s life. It’s the elephant in the room that everyone hangs a garland upon as they enter. There’s no room for other experiences or self definitions: you are the brave little boy. But surgery, hospitals, are traumatic, and we don’t talk about that. We talk about the bravery of children who go through surgery or cancer treatments, but we never acknowledge that it isn’t bravery at all. That they don’t – none of us really – have a choice.

I don’t know how many surgeries I’ve had, but I know I don’t really talk about it. Sure, I mention it if it comes up, usually jovially: yeah, I had to go and have everything rebuilt at one point ha ha ha. I’m like the Bionic Woman. But that it was an experience whose trauma built up in me is something I don’t say.

I know my first surgery, intended to treat severe endometriosis, was a D&C. They scrape the lining of your uterus away, and hope it grows back right. It’s not major – an overnight stay, maybe. I woke up covered in my own blood. The hospital bed was full of it. It had been there for long enough that it had oxidised brown and smelt like old blood, not fresh. That weird, high, sticky smell that still makes me gag. I was alone. I got up and went into the adjoining toilet, washed myself. Put my own nightdress on instead of the gown. Stuffed a wad of toilet roll against my vag. Rang the bell. Sat in a chair while they changed the bed. I was calm as Buddha.

And that was supposed to be that. But it came back.

The second, the third were similar, but not so bloody. Laparoscopies, lasering endo off various internal organs, and D&Cs became normal. My abdomen is covered in tiny little scars from it. But it came back.

In the meantime I was living with endometriosis. It was not merely a question of heavy periods. It was constant. I never knew how badly I would bleed or when. I did not want to go out because going out meant wearing layers of protection in case I suddenly had a heavy bleed. And your vagina gets very very sore when you have to wear tampons or pads every day. And checking “am I bleeding?” every hour because with the biggest tampon and the biggest pad in the world on, you still only have an hour if it kicks off, puts a real dent in your night out. When it does kick off and you have 15 minutes before you’re in so much pain you can’t speak, it doesn’t dispose you to want to go far from home. My handbag rattled with Neurofen. I took eight a day, on a good day. On bad days I took whatever. It made no dent in the pain on bad days.

I went out to lunch with some friends from work one day and as we sat in the pub eating our chips it kicked in and that was the first time I had seen other people react to it. Apparently I went pale blue and sweaty and my hair went limp. I couldn’t walk, I couldn’t even sit. They drove me home. Seeing them see me go through it somehow made it more valid. I got quite a lot of grief for not coming back from lunch, from work.

I pushed for a hysterectomy. Hard. I didn’t have a life. I wanted a life. I didn’t want children and I knew my own mind on that topic. This was how I might get a life. My GP was an utter cunt. She wrote me a letter denying me a second opinion. She tried to force tranquillisers on me. She did not believe what I was experiencing. Short of dumping a bag of bloody linen on her desk, there was no way I could prove it. She refused to examine me (she had only done so once, a year before). She eventually referred me to the hospital gynae with a letter all but stating that this was mere neurosis and to give me a once over and send me on my way. I sued her.

At the time I didn’t know it was that painful because it was eating through me. Or that I had a hole in the back of my vagina. And because she didn’t examine me and because her letter meant I got examined by a newbie student gynaecologist – an encounter that from start to finish was over in four minutes – they didn’t spot it either. I sued them, too. I won.

This was traumatic.

I paid privately for a hysterectomy. It took place in August of 1995. I was 25. I had to beg my husband to be there. He didn’t want to be. He cited pressure of work, but with hindsight I don’t think that was the issue. He needed a wife with a uterus attached. Or perhaps I mean a uterus with a wife attached, I don’t know. At any rate that surgery ended my marriage. After it, he moved to the spare room and never came back, and all the thousand small gestures of goodwill, the little moments of connection upon which a marriage is predicated, stopped.

This was traumatic.

But as surgeries go, that was a lovely one. My consultant was a peach of a man, gentle, reassuring, humane. Tons of temazipam before I went in, so I slept and cackled my way through the cannula insertion. I woke up with the shakes. Went back to sleep again. Woke up, still shaking so hard it seemed my bed would walk across the room. I looked at the clock. Surely I must need a wee? I called a nurse to help me stand up, not realising I’d had an epidural. I faceplanted the nurse. We laughed. I went into the little loo (you can walk with an epidural, you just have to lock your knees), and … and bizarrely, having just had abdominal surgery, I washed my hair in the sink. That night I remember a nurse coming in, in the dark, perfunctorily flipping me over, and jabbing the most extraordinarily painful needle into my buttock. It was morphine. I was asleep before I got to the “w” of “ow”.

It was August-hot, my goodness it was so hot. I had long compression stockings on and complained to the lady who came to clean my room the next morning. She told me the heat was making her prosthetic breast slide around like mad. Hello, sense of proportion. Maybe the compression stockings weren’t so bad after all. They took the stitches out, which I had been pretty scared about, but it was painless. “You’ll be in for five days”, they said. I was in for three. “You’ll be laid up for six weeks,” they said. I think I redecorated the living room on week five, although the first two weeks post-surgery, were punctuated by my regularly falling asleep instantly, like a toddler.

And it was all ok. Because this was the end of it.

I had my life back, and all the ghastliness and stress of the surgeries now seemed something in the past, and because it was over I was at peace with it. My new GP asked me whether I had children every time I visited him. Every time, I responded that I had had a hysterectomy and never wanted children, and he would say “you are brave, but I can see the sadness behind your eyes.” I didn’t go very often.

And then, in 1997, shortly after the deaths of my grandmother and grandfather, who had brought me up (it wasn’t a good year), it came back. I was bleeding again. I went to the Portland. The good gynaecologist there examined me and went pale. He had found the hole, tucked away in some long ignored corner of me. He thought it was cancer and told me we needed a soft tissue expert, that he could not do this surgery.

This was traumatic. And painful.

So we booked me in for an exam with Lindsay MacMillan – oh, what a lovely man, now sadly passed on – and he was scheduled to do the surgery. We did not know how bad things were, but we knew that the top back of my vagina was destroyed and that my bowel was also damaged, both needed profound reconstruction. It was likely, aged 27, that I would come out of this surgery with a colostomy bag. We didn’t know if it was cancer.

This was traumatic.

I was very, very scared. I booked myself on holiday, just me – because although I was still married I was in fact entirely alone – I flew off two weeks before the surgery, to take my mind off it. It was my first trip abroad alone and my first trip to the States. I went to San Francisco. I knew some people there, but they didn’t turn out to be gentle. In Fresno I was held at gunpoint for I don’t know how long in a man’s living room. At one point he took me down to his cellar, soundproofed, via a wooden trapdoor fitted in the floor of his garage. He had to move his RV to open it. I told him to get on with it and shoot me, but he didn’t. I could say more, but I’m not writing about that, today.

I came home. I didn’t tell anyone. There was no-one to tell. That was traumatic. And then a few days later I went in for this surgery.

The same routine again: shaking, waking, not knowing this time what was left of me. The nurses would not tell me. I was unable to determine it for myself because I had all sorts of drains and tubes coming out of me, which I had not had before. Having them sticking out of me was scary. Having them removed was scary. I remember the nurse warned me it would hurt. I turned my head and looked out of a window. On not the next rooftop but the one beyond, a man was working just in jeans, in the sunshine. She pulled the drain and it didn’t hurt, it tickled my insides (I think my idea of “hurts” bore no relation to the normal idea of “hurts” by that stage) and I laughed my head off. She said she’d never known anyone laugh before.

MacMillan came the next morning and it hadn’t been cancer, and I didn’t have a bag, which was good. But the surgery, even by his standards, had been so demanding that he had stuck a video camera inside me and filmed it. He was rather excited about this. I was less so. But glad to mostly be in one piece (and I kept my cervix, yaaay!). Apparently the endometriosis was undeniably still in my body cavity. He had lasered off what he could and a ton of adhesions from all my previous surgeries, but you can’t get it all, and the presence of oestrogen keeps it going. It was quite possible that it would continue to eat through me. I went home. Within 24 hours I had a fever. I was readmitted to the Portland in the dead of night and the doctor on duty there had to borrow a huge torch from the janitor to examine me. He used a speculum.

You really don’t know terror – proper fucking terror – until you’ve just had your vagina surgically reconstructed yesterday and someone with a janitor’s torch and a speculum comes to examine you.

I didn’t go back for my check-up. I removed my stitches myself, a few days later.

At this time my legal case against my old GP and the hospital was still ongoing and I ended up – again without my husband – watching the film of that surgery as part of the case. It is an unusual experience, watching someone burn your ovaries with a laser from inside your own abdomen, or seeing someone stick a finger through the holes in your body that should not exist. My poor lawyer went quite a strange colour. I didn’t really have a reaction to it until I was on the tube on the way home afterwards, when I suddenly and quite silently and without actually feeling any kind of emotion, cried. It was quick. Cry: end cry. Like a procedure called in a programme, used, stopped.

I got divorced. I found someone new. And healthwise things were ok – for a given value of – after that, until my sister’s wedding, when I suddenly projectile vomited and couldn’t stop. I’d had a very sticky-out tummy for a while, and knew something wasn’t right, but by now I was so terrified of going to an NHS GP – who wouldn’t listen to me – or to a hospital, who likely wouldn’t examine me properly – or to a private gynae, who (and this is worse) WOULD, that I just tried to ignore it. It’ll pass. It got worse. And then this happened. I honestly don’t remember who I went to this time. Maybe the Portland again. And there was something the size of a seven month pregnancy in me. And they thought it was cervical cancer. And I couldn’t get an NHS surgeon to see me. For weeks I was on the phone trying to get someone to see me. Because the initial appointment was private this was hard. My GP was not helpful. In fact I had the distinct impression I was naughty, inconvenient for having gone straight to a private gyn I knew and trusted, rather than going to someone who wouldn’t listen and had no clue of my history.

This was traumatic.

I have a very clear memory of spending a lot of time on phone calls – each one short – and of one afternoon sitting at my desk in my office with my head, my face in my hands and crying. It was the first and only time I ever cried at work. But this was despair, because here I was with this huge wtf in me, and … I just couldn’t get any help. Eventually I did. I had surgery at King’s College up near Euston – not the lovely new one, the really scabby old one. I lost my ovaries, but it wasn’t cancer, again. The cannula hurt like fuck. The fragmin shots left me covered in bruises. I was on a normal, open ward and this alone made me want to die. On my release day, the nurses turned up with a big bag of birth control pills. “I’ve just had my ovaries removed,” I said, “and they took my uterus eight years ago.” No, I had to take these, apparently. Why? Because I needed the oestrogen. “I can’t take it,” I said. I’ve got endo, that’s why I keep coming back. The oestrogen keeps it alive.” They hadn’t a fricking clue what they were doing. I came home without anything.

I was referred to see an endocrinologist to help me with the whole “suddenly not having any ovaries” thing. I told him I wasn’t taking oestrogen, and why. He told me that without oestrogen I would suffer terrible depression (really? At that point how would I know?), that my skin would thin and wrinkle and I would be old and unattractive. That I would have no libido. That my vagina would dry out and be useless.

And that my bones would crumble, but that was totally secondary to the whole “becoming ugly and unfuckable” thing.

But I couldn’t take oestrogen. Because if I had to go through another one of these “Oh you’ve got cancer! Oh no wait, you haven’t got cancer” things I was going to hang myself just to make it stop. So I didn’t take oestrogen. And I didn’t go back to that endocrinologist.

Cue two years of actual hell. I can’t describe it. It was like being inside a washing machine, if washing machines’ boil cycles also included a panic mode. And then my body adjusted. I am not wrinkly. My vagina didn’t dry out and disappear. I have a ferocious libido. Never believe people when they say these things. Never be afraid of being ugly or unwanted.

Midway through 2012 I had something else go wrong. I ignored it for as long as I could, but eventually I had to go back to my GP and say “again with the vagina” and I gritted my teeth and let her examine me, and she got the hospital to send me an appointment. And I moved that appointment back. I moved it back. I kept moving it back. My GP gave me shit for it. I explained that I find examinations incredibly traumatic. She responded by saying I needed to take responsibility for myself and that in future she would refuse to refer me for anything else.

I moved it back every month for a year. And then eventually – I don’t know why, but eventually one day I was capable of keeping the appointment, so I went. I sat in the waiting area (thankfully alone) feeling dizzy and sick. When I finally got called in by a really lovely registrar – my goodness, she was so kind – I sat down, burst into tears and said “I’m sorry but I can’t let you examine me.” And she said it’s ok. Sometimes this happens. We’ll book you in and do everything under a general anaesthetic. “We book women in for smear tests under a general,” she said. And the relief was so great. Not that I didn’t have to be examined, but that this was normal, that there were procedures for this, that other women felt the same, that at last, for the first time, someone medical had heard of the experience I was having and considered it valid.

The surgery was ok. It wasn’t really ok. When they tried to put the cannula in, all my veins hid. They bent two needles scraping them about in my hands. It hurt. A lot, actually. There was no premed. As usual I woke and just felt relieved it was done, just wanted to escape. And I went home and didn’t think about it any more, although peculiarly this fairly minor surgery was the most painful to heal.

None of this, individually, is a big deal on paper. Yet cumulatively I think this last surgery may have represented the final straw that’s broken the back of my capacity to let people near me. It’s not even the surgery. It’s my GPs attitude. It’s the assistant anaesthetist holding a needle bent like a fishhook up in front of my face, “Look!” It’s the fact that for every kind and competent consultant surgeon or anaesthetist or registrar, there are people who would give a woman who has just lost her ovaries, birth control pills (imagine the raw agony of that if you had been a woman who wanted children), or who tell you off for being terrified, who don’t listen, who deny you access to basic medical care out of sheer ego, who deny you access to basic medical care because they think it’s impossible to have mental health issues AND a broken body, who prioritise your future sexual availability over your future skeletal integrity.

We have a problem with the way we treat people. We have a problem with the way we view and speak about surgery and medical intervention. We aren’t being honest when we call a child or a cancer patient “brave” and in the same sentence do not admit that we are failing that child or that cancer patient – we are placing an even greater burden on them – by requiring “bravery” of them. Let’s have less bravery. Let’s have more honesty, and let’s have the drugs that make these often very traumatic experiences bearable, painless, made available for people across the board – not just dependent on your having a sympathetic GP, a creature I’m personally convinced is mythical.

This is what we don’t talk about when we talk about surgery. That people you don’t know touch you. They mean well (sometimes) but they hurt you. Your bodily autonomy is removed from you in a way that we generally only experience as adults if we’re being sexually assaulted. And a lot of women HAVE been sexually assaulted and so they find this difficult experience far more difficult. But we don’t discuss this. And we don’t discuss gynaecological surgery or the often dreadful traumas and damage experienced by women in childbirth because that’s a bit distasteful. And we don’t discuss how the trauma of medical procedures affects our relationships with the people around us, how it’s not necessarily this great bonding experience where people rally ’round and help you. Quite often you keep things to yourself because you don’t want to distress children or older family members, or because if you DO tell them the truth you will end up having to cope with their stress reaction, and that will take priority over coping with your OWN. Sometimes it ends your marriage. Ultimately you are an animal, an emotional being more than a rational one, going through a traumatic physical experience. It is likely to affect you beyond your visible scars. You’re likely to need more support than a surgical stocking afterwards.

If we treat medical intervention solely as a logical process, a necessity that we must all cope with in some sort of post-Victorian-brutalist denial, traumatic or repeated experience of it can change you, and your idea of who you are, and the ways in which you relate to others.

“Hello I had fifteen surgeries. And my name’s Marvin.”

In that order.

*Not real name.

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